20 Illness Topics for Invisible Illness Week Online Conference

September 13, 2009

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We hope you will join us during some of the seminars for
National Invisible Chronic Illness Awareness Week starting tomorrow (Monday, Sept 14)

All times are pacific time, USA
Listen here http://www.invisibleillnessconference.com

Find out all information , speakers and more at http://www.invisibleillnessweek.com

Feel free to pass this along! (In fact, we’d LOVE you to do so!)

SEPT 14

MONDAY – 9 AM
Understanding How we Uniquely Deal with Difficulties in Life
Georgia Shaffer

MONDAY – 12 PM
Finding Health Insurance Coverage with a Pre-existing Condition
Jennifer Jaff

MONDAY – 3 PM
Super Foods for Super-Natural Health
Joanna Faillace

MONDAY – 5:30 PM
Hearts of Gratitude and Joy
Maureen Pratt

SEPT 15

TUESDAY 9 AM
Coping with Chronic Illness in Your Marriage
Bill & Pam Farrell

TUESDAY 12 PM
Coping with Crises on Top of Chronic
Jennifer Saake & Lisa Copen

TUESDAY 3 PM
How to Start a Business When You are Chronically Ill
Kirsten Borrink

TUESDAY 5:30 PM
To to Be Announced
Kelly Rouba

SEPT 16

WEDNESDAY 9 AM

It’s OK to say NO: Building Healthy Boundaries
Jenni Prokopy

WEDNESDAY 12 PM
Parenting When You are Chronically Ill – Chaos and Confessions
Dena Dyer, talking with Lisa Copen

WEDNESDAY 3 PM
Simplifying Your Home and Housework
Marcia Ramsland

WEDNESDAY 5:30 PM
Real Talk About Men and Chronic Illness
Jeff Kenyon

SEPT 17

THURSDAY 9 AM
Find the Job You Desire and Can Do
Rosalind Joffe

THURSDAY 12 PM
When Your Child is Chronically Ill
Jolene Philo

THURSDAY 3 PM
Managing College with a Chronic Illness
Lynn Royster

THURSDAY 5:30 PM
Helping Others Understand Your Pain
Karen Richards

SEPT 18

FRIDAY 9 AM
Applying and Winning Disability Assistance When You Are Chronically Ill
Scott Davis

FRIDAY 12 PM
Being a Teenager with a Chronic Illness
Naomi Kingery

FRIDAY 3 PM
Surgery Preparation
Curtis Dean Hall

FRIDAY 5:30 PM
Closing workshop
Lisa Copen and guests

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Rest Ministries Sponsors 5-Day Virtual Conference Online

September 13, 2009

09_logo-for-blogSBWIRE – SEPT 14, 2009 / Nearly 1 in 2 people in the USA live with a chronic illness and about 96% of these illnesses are invisible.* Rest Ministries, Inc., the largest Christian organization that serves the chronically ill, and an affiliate of Joni Eareckson Tada’s International Disability Ministry, is encouraging those with illness, friends, family, caregivers, and churches to get involved in their annual outreach, National Invisible Chronic Illness Awareness Week, September 14-20, 2009.

In addition to churches having outreach events for those with chronic conditions, Rest Ministries organizes a 5-day free virtual conference with 20 seminars that can be attended via one’s computer and computer speakers. Seminars are on a variety of topics including marriage, parenting, starting a business, how to apply for disability and more—all when you live with a chronic illness. The seminars are held via Blog Talk Radio and listeners can call in through their phone line with questions.

Well known Christian authors who will be presenting include:

  • Bill and Pam Farrel, best-selling authors; The Marriage Code (Harvest House, 2009)
  • Naomi Kingery, author of Sugar Free Me (Xulon Press, 2008)
  • Dena Dyer, author of Mothers of the Bible (Barbour Publishing, 2009)
  • Georgia Shaffer, author of How Not to Date a Loser (Harvest House, 2008)
  • Joanna Faillace, Certified Biblical Health Coach an author of Super-Naturally Healthy Families Cookbook Devotional
  • Lisa Copen, author of Beyond Casseroles: 505 Ways to Encourage a Chronically Ill Friend (Rest Publishers, 2008)
  • Maureen Pratt, author of Peace in the Storm: Meditations on Chronic Pain & Illness (Galilee Trade, 2005)
  • Jennifer Saake, author of Hannah’s Hope: Seeking God’s Heart in the Midst of Infertility, Miscarriage and Adoption Loss (NavPress, 2005)
  • Marcia Ramsland, author of Simplify Your Life (Thomas Nelson, 2004)
  • Jolene Philo, author of A Different Dream for My Child (Discovery House Publishers 2009)

Lisa Copen, 40, founder of Rest Ministries says, “Many Christians may have a solid walk with the Lord, but the emotional roller coaster of a chronic illness and its constant progression can leave them feeling alone and misunderstood. They are hanging on by a thread and being told they look fine and should just make themselves get up and go to church only adds to the isolation and bitterness of others ‘not getting it.’ The emotional scars can be harder to cope with than the actual illness.”

Copen, who has lived with rheumatoid arthritis and fibromyalgia since the age of twenty-four, ended up in the hospital for a week last fall fighting off the flesh eating bacteria in an ankle wound. We never know what the next day will hold,” she explains. “It is so important that there is good communication between those who are ill and their loved ones, as well as the church body.”

Did Copen’s circle of friends and church come through for her? “It was an enlightening experience,” she says. “Although I teach others to ask for help, I found out how difficult it is. And then when I did ask for help, I experienced what it is like when you fall through the cracks and everyone thinks someone else is providing both the practical support as well as emotional encouragement.”

Rest Ministries extends their outreach about invisible illness awareness to churches, providing materials to start up HopeKeepers groups, books, cards, tracts, etc. About 96% of those with illness may appear perfectly healthy on Sunday mornings, but may struggle to get out of bed the remainder of the week.

Ken Chambers, Director of Church Relations at Joni and Friends International Disability Center, says, “It is vital that Christians understand the emotional and spiritual trials of those with invisible disabilities, as well as those with visible disabilities. I encourage church leaders to take advantage of the wealth of resources at Rest Ministries and to participate in the National Invisible Chronic Illness Awareness Week, which they sponsor annually.”

One can get involved by joining the hundreds of bloggers who are writing about illness in the next few days, by joining the cause on Facebook, and most especially, by tuning in for the conference. All seminars will also be recorded and archived.

See www.invisibleillness.com for more information or www.restministries.org for the sponsor of this event, Rest Ministries.

*Source: Chronic Care in America, U.S. Census Bureau

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More Newsletters Coming Soon

May 29, 2009

coffee-notebookHi, Friends!

Life has been a bit crazy as usual and though I was committed to the newsletter, time got away from me. Then I started reading the statistics and saw how few people actually received the ezine (past all those spam filters) and then what percentage read it. Well, not only was I in over my head with my time commitment, but it wasn’t even reaching you.

I totally understand your limitations in reading every email that you receive. I delete ezines I’ve subscribed to sometimes because I don’t have time to read them and if I don’t soon my inbox is over 500!

Plus, in the age of Twitter, I’ve (sadly) grown accustomed to explaining myself in 140 characters or less. This isn’t alwasy a good thing, and yet, if I can try to be precise and manage my time better, I can get back to my real love — writing. I have a mom book in the works that I would really love to finish up!

And yet, there is so much great information I run across on the web. Health/illness resources I want you to know about, inspirational videos, encouraging articles, etc. What’s a gal to do?

Well, my answer is that I am condensing the newsletter to one kind of tip or article or book review a week. That will be sent to you via your subscription that we use through GetResponse. If you aren’t sure if you are signed up, go ahead and click here and if you are already signed up, it won’t sign you up again.

Then as I come along news about Rest Ministries or ministry web site, health sources, etc. everything else will get posted on MY BLOG at www.chronicillnesssupport.com. You can click this link right here and get whatever I post in an email and if it doesn’t interest you delete it right then and there.

You won’t have a long email that you have to decided to read or delete, or take up space in the meantime. More things will be in one place and I hope I can keep better track of it all too that way!

Sound okay?

I hope you will find this helpful! And don’t forget that we have lots going on now with preparations for Invisible Illness Week plus our new Christians with Chronic Illness Blog Carnival.

As with any information, I know it won’t all apply to you all the time, but I hope that you have a chance to glance at the topic matter and then when you meet someone who is going through a difficult time or if you are in need of encouragement, you will remember something you read that you will come back to now.

God bless,

Lisa Copen

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Prayer Room at Church Reaches Many

August 23, 2008

When HopeKeepers leader, Dorothy, discovered that her church, McIntosh United Methodist Church Florida was going to celebrate the National Day of Prayer, she organized a special prayer room. She had a special place where people could come and prayer. Candles, special books, scriptures, and music all set the scene for a place of quiet, rest, and alone time with the Lord. We will soon be posting photos on our hopenotes Blog. f you would like to reach Dorothy for suggestions for your own prayer room, email her at:<b> dbmc001@gmail.com


Amazing Woman and HopeKeeper Leader Help Put On Workshop for Stephen Ministers About Rest Ministries

August 23, 2008

We can’t tell you how excited we were to receive this email from Irma. We are eagerly awaiting to see if she can make a video of her next presentation so we can have more to share with you in case you want to do this too! Please pray that this may be a wonderful connection for us to start sharing ministry ideas with Stephen Ministries

“Recently, one of the Stephen Ministers on my team has been given a care receiver, who suffers tremendously. We were desperate to find resources for this gentleman. Word of mouth led me to tour website and I’m so very grateful. I was so impressed with it and the many helpful materials referenced that I put together an hour-long Continuing Education program for all our Stephen Ministers giving them samples and sharing the benefit of going on-line at Rest Ministries.

I connected with a facilitator from a local HopeKeepers Group and she came to our program, so she could share her personal experiences and insights and spread the word about the availability of her support group. Now I have some neighboring Stephen Ministry teams that also want this info shared with their group.”


Have you visited the new Rest Ministries web site yet?

August 23, 2008

Rhonda says, “Hi Lisa, I finally joined the Sunroom. Not sure why I never got around to it before now. What an awesome name for it. It’s perfect. I just joined today and already have sent messages back and forth with other Sunroom members. Thank you for all the work you do to make it easy for the rest of us to gain many blessings. Create a positive day!”

Thanks, Rhonda! We’re at 577 MEMBERS… and still growing daily. Somehow, with all of the different groups, however, people are still able to connect with those they have the most in common with. Got kids under 10? Are you a stay-at-home dad? Whereever you are “at” in this journey, there are people there waiting to get to know you!


Challenges of Starting an Illness Support Group Hit Home with Reader

August 23, 2008

Have you read Lisa’s new article, “4 Dilemmas Illness Support Group Leaders May Discover.”
She was delighted to receive this comment on it over at Scribd (a great place for articles to read!) The article was also recently featured this week at MyQ10: Pharmaceutical and Medical News Blog.

“You know many people could benefit from your wisdom. Lawyers, doctors, social workers and
others are in this situation of receiving complaints all day long – it is their job but can take a toll on them
if they are not prepared by the Divine Hand or by this type of discussion. I’d like to see more of your work
as you post online.”

. . . . . . . . . . . . . . . . . . . . . . . .

We are honored to be able to receive messages like this! Wow… “Thank you so much for starting this site. It has saved my life. I have been sick for 8 months and still don’t have a diagnosis. I have heard everything from MS to cancer. My bloodwork came nack that I do have arthritis inflamation. I know you suffer from the same disease. Thank you again for giving me hope.” -H