20 Illness Topics for Invisible Illness Week Online Conference

September 13, 2009

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We hope you will join us during some of the seminars for
National Invisible Chronic Illness Awareness Week starting tomorrow (Monday, Sept 14)

All times are pacific time, USA
Listen here http://www.invisibleillnessconference.com

Find out all information , speakers and more at http://www.invisibleillnessweek.com

Feel free to pass this along! (In fact, we’d LOVE you to do so!)

SEPT 14

MONDAY – 9 AM
Understanding How we Uniquely Deal with Difficulties in Life
Georgia Shaffer

MONDAY – 12 PM
Finding Health Insurance Coverage with a Pre-existing Condition
Jennifer Jaff

MONDAY – 3 PM
Super Foods for Super-Natural Health
Joanna Faillace

MONDAY – 5:30 PM
Hearts of Gratitude and Joy
Maureen Pratt

SEPT 15

TUESDAY 9 AM
Coping with Chronic Illness in Your Marriage
Bill & Pam Farrell

TUESDAY 12 PM
Coping with Crises on Top of Chronic
Jennifer Saake & Lisa Copen

TUESDAY 3 PM
How to Start a Business When You are Chronically Ill
Kirsten Borrink

TUESDAY 5:30 PM
To to Be Announced
Kelly Rouba

SEPT 16

WEDNESDAY 9 AM

It’s OK to say NO: Building Healthy Boundaries
Jenni Prokopy

WEDNESDAY 12 PM
Parenting When You are Chronically Ill – Chaos and Confessions
Dena Dyer, talking with Lisa Copen

WEDNESDAY 3 PM
Simplifying Your Home and Housework
Marcia Ramsland

WEDNESDAY 5:30 PM
Real Talk About Men and Chronic Illness
Jeff Kenyon

SEPT 17

THURSDAY 9 AM
Find the Job You Desire and Can Do
Rosalind Joffe

THURSDAY 12 PM
When Your Child is Chronically Ill
Jolene Philo

THURSDAY 3 PM
Managing College with a Chronic Illness
Lynn Royster

THURSDAY 5:30 PM
Helping Others Understand Your Pain
Karen Richards

SEPT 18

FRIDAY 9 AM
Applying and Winning Disability Assistance When You Are Chronically Ill
Scott Davis

FRIDAY 12 PM
Being a Teenager with a Chronic Illness
Naomi Kingery

FRIDAY 3 PM
Surgery Preparation
Curtis Dean Hall

FRIDAY 5:30 PM
Closing workshop
Lisa Copen and guests

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Rest Ministries Sponsors 5-Day Virtual Conference Online

September 13, 2009

09_logo-for-blogSBWIRE – SEPT 14, 2009 / Nearly 1 in 2 people in the USA live with a chronic illness and about 96% of these illnesses are invisible.* Rest Ministries, Inc., the largest Christian organization that serves the chronically ill, and an affiliate of Joni Eareckson Tada’s International Disability Ministry, is encouraging those with illness, friends, family, caregivers, and churches to get involved in their annual outreach, National Invisible Chronic Illness Awareness Week, September 14-20, 2009.

In addition to churches having outreach events for those with chronic conditions, Rest Ministries organizes a 5-day free virtual conference with 20 seminars that can be attended via one’s computer and computer speakers. Seminars are on a variety of topics including marriage, parenting, starting a business, how to apply for disability and more—all when you live with a chronic illness. The seminars are held via Blog Talk Radio and listeners can call in through their phone line with questions.

Well known Christian authors who will be presenting include:

  • Bill and Pam Farrel, best-selling authors; The Marriage Code (Harvest House, 2009)
  • Naomi Kingery, author of Sugar Free Me (Xulon Press, 2008)
  • Dena Dyer, author of Mothers of the Bible (Barbour Publishing, 2009)
  • Georgia Shaffer, author of How Not to Date a Loser (Harvest House, 2008)
  • Joanna Faillace, Certified Biblical Health Coach an author of Super-Naturally Healthy Families Cookbook Devotional
  • Lisa Copen, author of Beyond Casseroles: 505 Ways to Encourage a Chronically Ill Friend (Rest Publishers, 2008)
  • Maureen Pratt, author of Peace in the Storm: Meditations on Chronic Pain & Illness (Galilee Trade, 2005)
  • Jennifer Saake, author of Hannah’s Hope: Seeking God’s Heart in the Midst of Infertility, Miscarriage and Adoption Loss (NavPress, 2005)
  • Marcia Ramsland, author of Simplify Your Life (Thomas Nelson, 2004)
  • Jolene Philo, author of A Different Dream for My Child (Discovery House Publishers 2009)

Lisa Copen, 40, founder of Rest Ministries says, “Many Christians may have a solid walk with the Lord, but the emotional roller coaster of a chronic illness and its constant progression can leave them feeling alone and misunderstood. They are hanging on by a thread and being told they look fine and should just make themselves get up and go to church only adds to the isolation and bitterness of others ‘not getting it.’ The emotional scars can be harder to cope with than the actual illness.”

Copen, who has lived with rheumatoid arthritis and fibromyalgia since the age of twenty-four, ended up in the hospital for a week last fall fighting off the flesh eating bacteria in an ankle wound. We never know what the next day will hold,” she explains. “It is so important that there is good communication between those who are ill and their loved ones, as well as the church body.”

Did Copen’s circle of friends and church come through for her? “It was an enlightening experience,” she says. “Although I teach others to ask for help, I found out how difficult it is. And then when I did ask for help, I experienced what it is like when you fall through the cracks and everyone thinks someone else is providing both the practical support as well as emotional encouragement.”

Rest Ministries extends their outreach about invisible illness awareness to churches, providing materials to start up HopeKeepers groups, books, cards, tracts, etc. About 96% of those with illness may appear perfectly healthy on Sunday mornings, but may struggle to get out of bed the remainder of the week.

Ken Chambers, Director of Church Relations at Joni and Friends International Disability Center, says, “It is vital that Christians understand the emotional and spiritual trials of those with invisible disabilities, as well as those with visible disabilities. I encourage church leaders to take advantage of the wealth of resources at Rest Ministries and to participate in the National Invisible Chronic Illness Awareness Week, which they sponsor annually.”

One can get involved by joining the hundreds of bloggers who are writing about illness in the next few days, by joining the cause on Facebook, and most especially, by tuning in for the conference. All seminars will also be recorded and archived.

See www.invisibleillness.com for more information or www.restministries.org for the sponsor of this event, Rest Ministries.

*Source: Chronic Care in America, U.S. Census Bureau

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Health Hero Award Thank You!

May 29, 2009

Well, it was officially announced last week, I won the “audience choice” award for the Our Bodies Ourselves contest as the Women’s Health Hero. I was thrilled and planned to blog about it right away, but then I kept reading through all the nice things you wrote, and bawled. And then read some more. And felt so unworthy.

>> read more

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Thanks to Bottom Line Personal

April 20, 2008

Thanks to a Bottom Line Personal
This popular newsletter that goes out to over 500,000 people is featuring a “blurb” that states the findings of our poll from this last year about living with invisible illness. With 1058 respondents, over 50% of you said that the most annoying of frustrating thing a healthy person could tell you about your illness is “you look so good!” Because you all took the time to fill out this poll, we’ll have the news featured to half a million people! Thank you!

> read about Bottom Line Personal


Invisible Illness Week Being Planned

November 30, 1999

In case you are wondering… we are starting to update the web site and pull some things together for National Invisible Chronic Illness Awareness Week. We will be having our “chat seminars” this year as telephone seminars, where you can call in and listen and participate. Lisa will be ordering updated brochures and other items in the next few weeks.

With everyone trying to save money, we want to be good stewards and not purchase a bunch of stuff no one is interested in, so watch for an upcoming survey to tell us what you would be interested in purchasing. We want to have items available that you want (brochures, pins, bumper stickers)!